Home in Sayulita

Sunday, September 9, 2018

An uncertain day

Having sold my Condo In PuertoVallarta.  I thought I was settled for good in Sayulita. Was not to be.
I have just come back from San Francisco CA. where I was diagnosed with ALS. . How do I feel about this diagnosis. Well not good but not as bad as one might think. The Doctors give me 2 to 5 years and at my age, likely two. My muscles will deteriorate until I cannot breathe, eat or talk without machines. Never the less I don't feel angry or why me. I am just scared. . How will this play out..... My spectacularly beautiful and wonderful home for 15 years in Sayulita, I've put up for sale. Joel and I have bought a condo on flat ground in the restaurant area of Old Town PuertoVallarta. We bought the last 2 bedroom in this new building. The Oceana.. It's the perfect location for me. No stairs and close to everything. I have been feeling the effects of this illness for about a year.. I have constant cramps in my legs. The cramps are now moving up my arms, I eventually will not have use of any of my limbs. Then what? I have the best team of Doctors I believe possible. But they are in San Francisco and I am determined to live and die in PuertoVallarta. I can still travel to SF for monitoring but for how long and then what. I already need a wheel chair for travel. So many unknowns but for sure I will eventually need constant care. Joel has committed himself to me to see this through. Joel will have to give up work to care for me. I feel worse for him than for me. He has a very successful real estate career and giving it up will be hard, I will go to San Francisco in the middle of August for a current evaluation and get more of an idea how fast the disease is progressing. I will stay with my ex.(Michael) He will take me to all Dr.Appointments and help me get around and be sure I am safe. I feel so lucky to have Joel and Michael watching over me and caring. Believe me I love them, who could have a better family. Next update after I return from San Francisco.

Sunday, February 18, 2018

Sayulita Afternoon

It's a beautiful day here in Sayulita again. A wonderful breeze is blowing through the house. Joel and I are going onto 5 years together. Time is passing so quickly. Since selling my condo in Puerto Vallarta I have spent much more time here in Sayulita. The "pueblo" is a bee hive of activity with tourists and their small children everywhere. It was busy the entire summer last year.... I have reached an advanced age where living in the house is too many stairs for me. Joel and I live in the Studio. I am amazed how easy it is for us. We are considering putting in an elevator up to the upper level and moving back up there. That remains to be seen. I think this year we will spend part of the summer in Mexico City. I have leased my San Francisco flat through the summer.  I finally got rid of my Lexus and bought a Rav 4. No cache but the perfect car for here. I had cataracts removed and replaced my eye lenses this year and can actually read without glasses. Amazing!. Now if I could only hear! I have been having problems walking lately. Doctors say it is not structural. So further tests will reveal the problem. Go to San Francisco later this week for the result of tests. I have no pain walking just that
my legs don't follow. :-(( I do feel good and I am optimistic about life. Did some traveling last year.
Joel, myself and my ex went on a trip to Russia. It was truly a great experience. I recommend everyone should see Russia. St. Petersburg and Moscow have such great history's. We traveled mostly be train. They have fast trains unlike the ancient trains in the USA. Can't remember how long it has been since I blogged. Joel and I went to Cuba before Trump started closing it down again. It's like a 50's time capsule. I would not recommend anyone go there just yet! I get 4 teeth transplants later this week. I will soon be the bionic man..... I am jumping all over the place but my thoughts are not as organized as they use to be....... As you can see no real news but I am still here and functioning. Life is good.