Home in Sayulita

Sunday, September 9, 2018

An uncertain day

Having sold my Condo In PuertoVallarta.  I thought I was settled for good in Sayulita. Was not to be.
I have just come back from San Francisco CA. where I was diagnosed with ALS. . How do I feel about this diagnosis. Well not good but not as bad as one might think. The Doctors give me 2 to 5 years and at my age, likely two. My muscles will deteriorate until I cannot breathe, eat or talk without machines. Never the less I don't feel angry or why me. I am just scared. . How will this play out..... My spectacularly beautiful and wonderful home for 15 years in Sayulita, I've put up for sale. Joel and I have bought a condo on flat ground in the restaurant area of Old Town PuertoVallarta. We bought the last 2 bedroom in this new building. The Oceana.. It's the perfect location for me. No stairs and close to everything. I have been feeling the effects of this illness for about a year.. I have constant cramps in my legs. The cramps are now moving up my arms, I eventually will not have use of any of my limbs. Then what? I have the best team of Doctors I believe possible. But they are in San Francisco and I am determined to live and die in PuertoVallarta. I can still travel to SF for monitoring but for how long and then what. I already need a wheel chair for travel. So many unknowns but for sure I will eventually need constant care. Joel has committed himself to me to see this through. Joel will have to give up work to care for me. I feel worse for him than for me. He has a very successful real estate career and giving it up will be hard, I will go to San Francisco in the middle of August for a current evaluation and get more of an idea how fast the disease is progressing. I will stay with my ex.(Michael) He will take me to all Dr.Appointments and help me get around and be sure I am safe. I feel so lucky to have Joel and Michael watching over me and caring. Believe me I love them, who could have a better family. Next update after I return from San Francisco.